Finding someone who "really" understands what you are going through or knows how you are feeling emotionally, as well as physically, is very difficult. Support groups, whether on-line or thru meeting in person, help patients and families deal with the physical & emotional difficulty of adapting to rare chronic diseases such as Inflammatory Myopathies.
This page is being updated.
To locate a adult support group in your area contact the TMA www.myositis.org or click on the underlined email contact for the KIT Representative in your area. Not all formed groups are linked below, so contact the TMA for the group nearest you. If your state does not have a support group, TMA is looking for persons to start one.